Category: DMD Pathfinder News

The DMD Show

If you’re an adult living with Duchenne and in the London area on March 23rd please come and join DMD Pathfinders for the DMD Radio Show. To register please go to: TheDMDShowregistration

Frustrations

By Benjamin James Why do we hold ourselves back sometimes? Do we fear what is to come, what the future holds? The frustrations of life try and hold us back. We are faced with a choice, be held back by our frustrations, or make a positive change, to face up to the reasons of our Read More …

Young People Living with Duchenne

Mark Chapman and Alan Pockley represented DMD Pathfinders at the Takin’ Charge session in Newcastle on Wednesday 10th February. Mark and Alan, a local from Sunderland, did a great job presenting to parents and young people about their lives as living with DMD, the joys and challenges.   The feedback was great!  People really appreciated Read More …

Carl Tilson – A life well lived

  Everyone involved in DMD Pathfinders was saddened to hear that active Duchenne campaigner Carl Tilson recently passed away on December 17th at the age of 28 from complications associated with Duchenne Muscular Dystrophy.   He was a devoted fan of Manchester City FC and grandson of their legend player Fred Tilson. As a hugely Read More …

An International Conversation: Adults living with Duchenne.

We are looking for volunteers living with Duchenne from around the world and the UK. DMD Pathfinders is hosting a panel session during Action Duchenne’s International Conference, entitled an International Conversation: Adults living with Duchenne. If you are interested we would like your participation via an online link. It will be led by our Co-Founders Read More …

The World’s Worst Place to Be Disabled?

Sam Waddington, one of our regular bloggers, comments on a recent TV documentary ‘The World’s Worst Place to be Disabled’, aired as part of BBC THREE’s disability season.

Distance 

Ben James blogs his thoughts about living with Duchenne and how it relates to the world around us whilst on his travels to Australia. It’s not until you travel nearly half the way around the world that you realise how far you’ve been both in terms of distance and in life and the endless possibilities Read More …

DMD Pathfinders Mentor younger people with DMD

On Saturday DMD Pathfinders Mithun Soul and Farhan Mian joined with families and young people on the Takin’ Charge Keech preparing for adulthood programme. Mithun and Farhan spoke about their different experiences of living as independent adults. They both talked about the different housing options that they have managed to secure for themselves, how and Read More …