Category: DMD Pathfinder News

Duchenne Charities launch campaign for treatments for Adults with DMD

  Thursday, 12th January, 2017.   Duchenne UK and DMD Pathfinders are delighted to announce the launch of a joint campaign to ensure that treatments and therapies developed for Duchenne muscular dystrophy (DMD) are relevant and available to adults living with the condition as well as children.   The campaign, to be spearheaded by DMD Read More …

DMD Pathfinder Trustee Mithun Soul’s journey to DMD Pathfinders

  On Saturday I got back from the “Into the Future” Duchenne Leadership Camp, the first Leadership camp ran by us with Duchenne. It feels like yesterday, when I first joined the Action Duchenne’s Takin’ Charge project. It’s a unusual kind of a story really, it was like a great opportunity waiting to happen. I went to Read More …

Into The Future

Into the Future Posted on September 19, 2016 After attending the DMD pathfinder’s leadership camp over the weekend I have returned home feeling empowered. Empowered to move forward, empowered to make a change in my life and the lives of others affected and not affected by DMD. DMD pathfinders is a user-led charity, run for Read More …

DMD Pathfinder Mentoring programme continues apace…

On 15th June, Mark, represented DMD Pathfinders at the OU Sexuality Alliance event with Together for Short Lives to support a Masterclass for professionals learning about the new guidance on Talking about sex, sexuality and relationships: Guidance and standards for those working with young people who have life-limiting or life-threatening conditions. The Sexuality Alliance [http://bit.ly/2aenoTG] Read More …

DMD Pathfinder Trustee Meets CEO of Komodo

DMD Pathfinder Trustee Mithun Soul has been progressing the work of DMD Pathfinders by researching the world of assistive technology design. On Sunday 5th June 2016, Mithun met up with Mauricio the CEO of Komodo, the inventor of Tecla Shield, at The Cube in Birmingham and had a great afternoon and a wonderful conversation about Read More …

Nobody does it better!

DMD Pathfinders demonstrate the impact of their mentoring of young people with Duchenne. Young people at the Action Duchenne’s current Takin’ Charge Session’s in St Oswald’s Newcastle and Douglas House in Oxford, have continued to benefit from the mentoring, advice and guidance from adults with DMD. A number of DMD Pathfinders have volunteered to support the Takin’ Charge Read More …

Into the Future…

  DMD Pathfinders and Takin’ Charge are calling all young people living with DMD to this ground breaking event: “Into the Future” Duchenne Leadership Camp  on the 16th and 17th September, 2016 at Hereward College in Coventry. Many of you have told us about how inspired you’ve been by the leadership of adults within the Duchenne community Read More …

BBC Radio 4 Interview – The Listening Project

On the 20th April, Mark Chapman, Chair of DMD Pathfinders recorded a conversation for the Radio 4 Listening Project  with Jack Ebanks ‘from the Takin Charge’  project. The ‘Listening Project’ is a collaboration with the British Library to capture the nation in conversation and build a unique picture of our lives today which will be Read More …