On 15th June, Mark, represented DMD Pathfinders at the OU Sexuality Alliance event with Together for Short Lives to support a Masterclass for professionals learning about the new guidance on Talking about sex, sexuality and relationships: Guidance and standards for those working with young people who have life-limiting or life-threatening conditions.
The Sexuality Alliance [http://bit.ly/2aenoTG] is a partnership including Together for Short Lives, the UK charity for children and young adults with life-limiting and life-threatening conditions [LLTCs], other nationally renowned charities, service users, lawyers, academics and public sector organisations in the UK.
The mentoring that adults with DMD do in this area of Sexuality and Relationships is very important whether it is working with young people, families or professionals.
Farhan, Matt and Mithun carried on this work when they took part in a Takin’ Charge session at Helen and Douglas House in Oxford. The session, in conjunction with professionals from the College of Sex and Relationship Therapists provided important mentoring support and guidance from adults with DMD for other young adults with DMD.
Mentoring on Independent living continued in July 2016 when Alan, Mark and Mithun took part in a mentoring session at Taki’ Charge Pathways to Housing event at The Centre for life in Newcastle.
It was a session on the planning necessary to ensure a thought out Pathway to Housing and independence during Transition. Members of DMD Pathfinders, Mithun, Mark and Alan were able to demonstrate their journeys to living independently with 24 hour care and role of personal health budgets and NHS Continuing Health Care budgets in making this possible.
There was a lot of information and a real buzz at the end of the day which saw people get great information and make important connections with key people and agencies who can support them going forward. The highlight for many was hearing directly from adults with DMD.