Month: October 2014

Ventilation and Duchenne – our new guide is now available

We can now share with you our latest guide – Ventilation and Duchenne: Frequently Asked Questions. Click this link to download Ventilation and Duchenne. About this book The guide has been written following evidence gathered from 300 members of DMD Pathfinders. This told us about many differing practices and conflicting advice about the best respiratory practice Read More …

Mental health and the value of peer support

October the 10th is World Mental Health Day so today’s blog is about how Duchenne can effect our mental well being. We look at the value of gaining support from ‘experts by lived experience’ – i.e. others who have DMD. As explained by one of the most prominant programmes to challenge stigma and discrimination, ‘Time to Read More …

DMD Pathfinders: Advice and Support for Adults with Duchenne Muscular Dystrophy

DMD Pathfinders is a user-led charity (reg. no. 1155884) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.

We are currently raising funds to provide advice, guidance and support to adults living with Duchenne.  At present, all our work is done by volunteers.

If you want to become a member of DMD Pathfinders, membership is free and you can apply to join here. Anyone can become a member, but only adult members with Duchenne living in the UK have voting rights.  Our Membership Policy should be read before applying.

Anyone wishing to support DMD Pathfinders but prefers not to be a member can register for regular updates here.
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